Six-year-old Sophia Resti was born with a congenital bone disorder called osteogenesis imperfecta, also known as brittle bone disease. She requires oxygen to help her underdeveloped lungs breathe and uses an adaptive stroller to get around. She learned to sit up only about a year ago.

Yet despite her numerous challenges, Sophia rises above it all. She recently underwent two surgeries to strengthen her legs with rods and is starting to bear weight on them. This is a giant step for Sophia and the entire Resti family. “Some doctors said she wasn’t going to make it. She has proven a lot of people wrong,” her mom said. “We call her our sunshine and she truly brightens our world.”

To help her meet these incredible milestones, Sophia has been receiving home healthcare services from St. Mary’s Healthcare System for Children since she was a baby. Her nurse coordinates her care to make sure she receives the services she needs. Sophia regularly receives a complement of physical, occupational, and speech therapies at home or at school.

The sunny Sophia attends kindergarten, loves music and all things sparkly— to match her sparkling personality.

“She is only 2 feet tall with a larger than life personality,” beams her mom. For her indomitable spirit, Sophia was chosen to be a Grand Marshal for the 2013 Walk for St. Mary’s Kids.