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Resource Library

Access the resources and information you need to be a strong advocate for a child with a complex medical condition.

Navigating Your Childs Care

A Practical Guide and Resource Directory for Children and Young
Adults with Medical Complexity and Special Healthcare Needs.

Category
Recreation
Trail’s Edge Camp is limited to 32 campers. Eligible children are between 5 and 18 years old, and must be ventilator-dependent for at least part of the day or night. They must also be able to interact and communicate with other children using speech or sign language.
Social Service Organizations
Organization connecting young adults and adults with neuromuscular disabilities, includes small grant program.

Can’t find what you are looking for?
Email Danielle Rieber at
drieber@stmaryskids.org
for assistance.