Using the Internet and Helpful Resources

You can also contact one of the very helpful advocacy (support for your needs) groups that offers advice from individuals in your area who share your situation, such as Parent to Parent – for referrals.

As an advocate for your child or adolescent, do not be hesitant to call or email such individuals. You may be surprised at how willing to help most health care professionals are.

Parent to Parent of NYS: Will match parents/caregivers to another parent/caregiver with a similar disability or special health care need to provide support. Also offers an on-line training for parents on a different topics: Advocacy Skills; Home Medical Care, Health Care Record Keeping, How to work with Professionals, Health Care Financial Resources:

The American Academy of Pediatricians (AAP)
“The American Academy of Pediatrics, founded in 1930, unites pediatricians throughout the Americas to ensure for all young people the attainment of their full potential for physical, emotional, and social health. To this end, the Academy dedicates its resources to professional education, advocacy for children, representation of pediatricians, public education, access to health care, and service to children. The American Academy of Pediatrics is composed of over fifty Chapters, organized into ten regional Districts.”

AAP also has a new web site dedicated to parenting needs and if you register (which is free), you can receive pediatric health information specially customized for you and your family.

The web site of the American Academy of Pediatrics holds a wealth of knowledge for the parent or guardian of a child with a medically complex condition. The site is built for physicians primarily but it is simple and straightforward and offers the parent much potential referral information. For example, one article on the site describes (below) the establishment of 11 new physician practices that are considered “Medical Homes” in the Hudson Valley.

Here is a good example of how digging deeply into a web site (AAP, in this case) may produce promising results in identifying a pediatrician who is also a “Medical Home” practitioner. By linking to this section of the AAP web site, you discover some interesting information (below).

Major Medical Home Practices in Hudson Valley
The AAP site has a report on the certification of eleven pediatric physician practices in the Hudson Valley–representing 236 physicians at 51 sites–have achieved medical home recognition. The Hudson Valley practices that earned Level 3 Medical Home Recognition are:

  • Bridge Street Family Medicine in Saugerties, NY, six physicians;
  • Clarkstown Pediatric Associates, headquartered in New City, NY, nine physicians at three sites;
  • Community Primary Care in Hopewell Junction, NY, solo physician;
  • Crystal Run, headquartered in Middletown, NY, 42 physicians at six sites;
  • Hudson River HealthCare, headquartered in Peekskill, NY, 28 physicians at 11 sites;
  • Hudson Valley Primary Care in Wappingers Falls, NY, two physicians;
  • Imtiaz A. Mallick, MD, FACP in Fishkill, NY, solo physician;
  • Institute for Family Health, headquartered in New Paltz, NY, 27 physicians at five sites;
  • Mount Kisco Medical Group, headquartered in Mount Kisco, NY, 59 physicians at 11 sites;
  • Open Door Family Medical Group, headquartered in Ossining, NY, 16 physicians at four sites; and
  • WestMed Medical Group, headquartered in Purchase, NY, 45 physicians at seven sites.