Online Resources

In addition to St. Mary’s online Resource Directory, the following resources may prove valuable when looking for information online.

Brain Injury

Neuro-Rehabilitation & Traumatic Brain Injury Program at St. Mary’s Hospital for Children
Brain Injury Association of America
Brain Injury Association of New York State
Association for Neurologically Impaired Brain Injured Children, Inc.
Concussion in Sports: pamphlet from the American College of Sports Medicine
Living with Brain Injury: A guide from the Brain Injury Association of America
Concussion Toolkit for Parents, Players and Coaches: The Concussion Awareness Training Tool
HEADS UP to Youth Sports: Online Training from the CDC

Chronic Illness

HIV/AIDS

AIDS Center of Queens County
Pediatric AIDS Foundation

Cerebral Palsy

United Cerebral Palsy of New York City

Asthma

American Academy of Allergy, Asthma and Immunology

Cancer

American Cancer Society

Diabetes

Juvenile Diabetes Research Foundation

Developmental Disabilities

Queens Parent Resource Center
Interagency Council of Mental Retardation and Developmental Disabilities
College and Scholarship Resources for Students with Disabilities

Autism

American Academy of Child & Adolescent Psychiatry
Autism and PDD Network
Autism Society of America
Autism Speaks

Pervasive Developmental Disorders (PDD)

What is PDD?

Communication Disorders

National Institute on Deafness and Other Communication Disorders
American Speech-Language-Hearing Association

Early Education

New York City Department of Education website
New York State Department of Education website

Family Resources

The Children’s Health Fund
March of Dimes
National Heart, Lung and Blood Institute
American Diabetes Association
Department of Health

Five Star Quality Rating System

CMS created the Five-Star Quality Rating System to help consumers, their families, and caregivers compare nursing homes more easily and to help identify areas about which you may want to ask questions. The Nursing Home Compare Website features a quality rating system that gives each nursing home a rating of between 1 and 5 stars. Nursing homes with 5 stars are considered to have much above average quality and nursing homes with 1 star are considered to have quality much below average. There is one Overall 5-star rating for each nursing home, and a separate rating for each of the following three sources of information:

  • Health Inspections – The health inspection rating contains information from the last 3 years of onsite inspections, including both standard surveys and any complaint surveys.
  • Staffing – The staffing rating has information about the number of hours of care provided on average to each resident each day by nursing staff.
  • Quality Measures (QMs) – The quality measure rating has information on 11 different physical and clinical measures for nursing home residents. The QMs offer information about how well nursing homes are caring for their residents’ physical and clinical needs.

St. Mary’s Hospital for Children has received a Five Star Quality Rating as one of the Top Nursing Homes in New York. The details can be found here.

Healthy Child Development

What is Child Development?
Developmental Milestones – Information for Parents
American Academy of Pediatrics
Kids Health

Hospitals and Healthcare Systems

American Hospital Association

Palliative Care

St. Mary’s Palliative Care Program

Caring Connections
A program of the National Hospice and Palliative Care Organization (NHPCO), a national consumer and community engagement initiative to improve care at the end of life.

Parenting

Caring for a seriously ill child
Respite Care at St. Mary’s Hospital for Children

Resources

American Medical Association
Children’s literature
Healthcare Association of NY State
NYS Dept of Health Topics A-Z Page
Healthfinder – A variety of Health topics and information from the National Health Information Center
Child Health Plus
The Marty Lyons Foundation
Foundation for Spinal Cord Injury Prevention, Care & Cure

Child Welfare

NYC Administration for Children’s Services
Adoption & Foster Care

Foster Care Information from the NYS Office of Children and Family Services
Association to Benefit Children

Medicaid

Medicaid Information

Supplemental Security Income (S.S.I.)

Social Security Supplemental Income Web Site
Monthly cash benefits to a low income family having a child with a disability. Not all children with disabilities will qualify. Get as much detailed medical and social/emotional documentation as possible before applying.

Safety

Foundation for Aquatic Injury and Prevention

Support Services

American Childhood Cancer Organization
Center for Family Support
Brave Kids