Advocating for Special Needs Children
Healthy Child Development
Traumatic Brain Injury & Coma Recovery Program at St. Mary’s Hospital for Children
Brain Injury Association of America
The Perspective Network
Brain Injury Association of New York State
Association for Neurologically Impaired Brain Injured Children, Inc.
Pervasive Developmental Disorders (PDD)
Healthy Child Development
What is Child Development?
Early Intervention at St. Mary’s Hospital for Children
Early Childhood Direction Center
Developmental Milestones – Information for Parents
Developmental Screenings – Information for Parents
National Parent Information Network
American Academy of Pediatrics
Hospitals and Healthcare Systems
A program of the National Hospice and Palliative Care Organization (NHPCO), a national consumer and community engagement initiative to improve care at the end of life.
Offers support, friendship, and understanding to families who have experienced the death of a child.
Compassionate Friends Internet Sibling Resource
Sibling chat room available for adults and teens to share concerns and feelings about the loss of a sibling. Also offers pen pal program for bereaved siblings of any age to meet other bereaved siblings with similar interests.
Bereaved Parents of the USA
Designed to aid and support bereaved parents and their families who are struggling to survive their grief after the death of a child. Information and referrals, newsletter, phone support, conferences, support group meetings. Assistance in starting groups.
Alive Alone, Inc
Self-help network of parents who have lost an only child or all of their children. Provides education and publications to promote communication and healing, to assist in resolving grief and to develop means to reinvest lives for a positive future. Bi-monthly newsletter.
The M.I.S.S. Foundation
Offers emergency and ongoing support for families suffering from the loss of a child. Provides information, referrals, phone support, newsletter, pen pals, literature, advocacy, and online chat room support.
Dedicated to assisting grandparents after the loss of a grandchild.
How parents can help their child cope with a chronic illness?
Caring for a seriously ill child
Communicating with a critically ill child
Respite Care at St. Mary’s Hospital for Children
National Dissemination Center for Children with Disabilities
American Medical Association
Healthcare Association of NY State
NYS Dept of Health Topics A-Z Page
Healthfinder – A variety of Health topics and information from the National Health Information Center
National Association for Home Care Child Health Plus
The Marty Lyons Foundation
Spinal Cord Injury
Independent & Community Living
Brooklyn Center for the Independence of the Disabled, Inc
Vocational and Educational Services for Individuals with Disabilities
Institute for Community Living LifeLine Support
A government program that offers qualified people a discount on their monthly local telephone bill. Each state has its own guidelines to qualify. Suffolk Independent Living Organization
Adoption & Foster Care
Supplemental Security Income (S.S.I.)
Social Security Supplemental Income Web Site
Monthly cash benefits to a low income family having a child with a disability. Not all children with disabilities will qualify. Get as much detailed medical and social/emotional documentation as possible before applying.
Flexible Endoscopic Evaluation of Swallowing with Sensory Testing
A website that provides information on the benefits, clinical resources and research on Tracheostomy & Ventilator Swallowing and Speaking Valves.
Advancing Human Expression and Learning
Information about VitalStimTherapy, the first proven treatment for dysphagia, which uses small electrical currents to stimulate the muscles responsible for swallowing. At the same time, trained specialists help patients “re-educate” their muscles through rehabilitation therapy.