Advocacy
A voice for children with special needs
St. Mary’s serves as spokesperson on many important health issues with the goal of informing and educating local and national decision-makers, as well as the healthcare community. St. Mary’s plays a vital role in promoting the importance of several key issues, including:
Parent Empowerment Training – Voice 4 Kids
The NYS Developmental Disabilities Planning Council, St. Mary’s Healthcare System for Children and Parent to Parent of New York State will be hosting an “Advocacy Training for Parents” of children and adolescents with special needs with specific emphasis on children who are medically fragile.
Saturday, March 27, 2010
10:00 am—3:00 pm (Breakfast and lunch provided)
Institute of Basic Research
1050 Forest Hill Road
Staten Island, NY 10314
Do you have a child who is medically fragile? If yes, this workshop is for you. Get answers from healthcare professionals
Registration is required. If you are interested in participating, please complete the registration form and return by mail or email to the addresses listed below.
Mail or email this application to: Vivian Figueroa St. Mary’s Hospital for Children 5 Dakota Drive, Suite 200 New Hyde Park, NY 11042If you have any questions about the program, please contact: Vivian Figueroa, Director of Foundation and Government Relations St. Mary’s Foundation for Children (718) 281-8666
or
Nanci Freiman, V.P., Administration & Finance The Disability Opportunity Fund 516-465-3741Transitioning from Pediatric to Adult Healthcare and Services
A Introduction to Healthy Transitions:
Promoting collaboration among youth, families, service providers and the medical community. View flyer
Saturday, April 17, 2010
9:00am-1:30pm (refreshments will be served
St. Mary’s Hospital for Children-Children’s Activity Center
29-01 216th Street
Bayside, NY 11360
RSVP by April, 12, 2010
For more information contact:
Annette RaiaParent to Parent of NYS
718-494-3462
1-800-866-1069
Brain Injury Awareness Month
Learn how you can help prevent head injuries at home, on the field, and in the car. Visit St. Mary’s special webpages on brain injury prevention.
Research
Improving the Quality of Life for Our Children
Our Institute on Research and Quality conducts collaborative studies on topics that affect children with special healthcare needs and applies these studies to practice. Programs like our pediatric Constraint Induced Movement Therapy for hemiplegia and world-renown Feeding Disorders Program are grounded in far-reaching research studies conducted by St. Mary’s.
